We are doing very well. I feel bad for neglecting this blog as it does have good information on it and I want to spread good news as well. There are so many bad stories out there, but we want to share a good one!
We are still battling the ‘aftermath’ of cancer. It’s such a rollercoaster and never-ending. I’m trying to think of what we’ve done and gone through now. AJ now has hearing aids, he has had one cataract surgery and will probably have another on his other eye. He will always wear reading glasses now. He will always have balance issues. He will never be able to play physical, contact sports. He is very much an old soul in a young persons body. I took pictures today after coming home from a Dr.’s visit and haircut. It is a progression that a young child should not have to go through. But he did and he is a survivor. There are a lot of survivors out there and we need to remember that. Cancer is not a death sentence, there are happy endings.
I thought we were/are home-free for awhile. I was so happy, the treatments worked, we were back on course, of course everything was a little different and new, what we refer to as ‘the new normal’. But things for AJ weren’t ok. He has struggled a lot with the fact that he woke up one morning a normal, healthy 7 year old. Someone who could do anything he wanted (within reason). To waking up in a hospital bed with limitations. Not only limitations, but being DEFINED by cancer. I’m sorry, but no one wants to be defined by cancer. We are getting better, a little bit every day. Here are some photos to add to my story.
Progression
Here he is today, not only looking good and healthy, but I like it that there is more happiness in his eyes.
Today
Filed under: Uncategorized Tagged: | cancer survivor, Dr. Ackerman riley hospital patient, dr. chang riley hospital patient, medullablastoma survivor, pediatric cancer survivor, pediatric medullablastoma survivor, riley hospital cancer patient
Christy-
Thanks so much for sharing and reminding each of us to look at our blessings in a whole new light. It has been wonderful to see AJ’s progress but I can understand his frustrations. God still has a special plan for him…initially it was to bring us all a little/lot more faith but I still believe there is something more for him to accomplish in this world!
Love you all – Jayne King